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  Registries and Studies

Registre de malalts renals de la Comunitat Valenciana
The renal patient registry in the Autonomous Community of Valencia.
http://dgsp.san.gva.es/isum/Renales
ERA-EDTA Registry
The European Dialysis and Transplant Association’s Renal Patient Registry. It gathers data from registries in Austria, Belgium, Denmark, Finland, Greece, Iceland, Italy, the Netherlands, Norway, Sweden and the UK, as well as Valencia and Catalonia.
www.era-edta-reg.org
Registro Italiano di Dialisi e Trapianto (RIDT)
The renal patient registry of Italy. It gathers data from 20 Italian regional registries.
www.sin-ridt.org
The Renal Registry
The UK's renal patient registry
www.renalreg.com
Qualitätssicherung in der Nierenersatztherapie (QuaSi-Niere)
Germany's renal patient registry
www.quasi-niere.de
Scientific Registry of Transplant Recipients (SRTR)
The Registry organ's transplant in USA.
www.ustransplant.org/
United States Renal Data System (USRDS)
The United States’ renal patient registry.
www.usrds.org
Australia and New Zealand Dialysis and Transplant Registry (ANZDATA)
Australia and New Zealand's renal patient registry
www.anzdata.org.au
Sociedad Española de Cardiología
The Spanish Cardiology Society, a public company, publishes annual statistical reports from the Spanish heart transplant registry.
www.secardiologia.es
The International Heart and Lung Transplant Registry
This organisation is part of the International Society for Heart & Lung Transplantation (ISHLT). Participation in the registry is open to any centre in the world that performs this treatment. It currently makes data available to 223 centres in 18 countries.
www.ishlt.org/registries
European Liver Transplant Registry (ELTR)
This registry includes the main European centres that perform liver transplants. It gathers data on transplantation, serves as a link between different centres and is a base for scientific studies and publications.
www.eltr.org
Collaborative Transplant Study (CTS)
This study looks into the main problems relating to transplantation (renal, liver, heart, lung and pancreas) through the use of a voluntary registry. Coordinated by the Department of Immunology at the University of Heidelberg, it gathers data from more than 300 transplantation centres in 45 countries.
www.ctstransplant.org
The Canadian Organ Replacement Register (COOR)
Canada's organ transplantation registry
www.cihi.ca/eindex.htm
Registro Español de Donantes de Médula Ósea (REDMO)
The Spanish bone-marrow donor registry provides information on haematopoietic stem-cell transplantation, promotes donation throughout Spain and is responsible for finding compatible donors on international registries.
www.fcarreras.es/esp/redmoe.html
The European Group for Blood and Marrow Transplantation Registry
A European database made up of a number of registries that gather very specific information on different transplantation indications.
www.ebmt.org/4Registry/registry1.html
International Bone Marrow Transplant Registry
Autologous Blood & Marrow Transplant Registry
A voluntary international registry that gathers information on haematopoietic stem-cell transplants and uses it as a reference for clinical decision-making and improving transplantation results.
www.ibmtr.org


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